I’m sure most of you know about True Blood’s Deborah Ann Woll’s boyfriend, EJ Scott who’s been diagnosed with Choroideremia and has been fighting for a cure for several years now.
We here at AlexSkarsgard.Net ran a charity drive back in 2009 to try and help out in lieu of fans sending in gifts to Alexander for his birthday. Over $1,400 was raised back then and now we’re here asking for your help once again.
What do we need??? Just your vote!
For what…for whom???
Jeff Benelli, CHMer and a semi-finalist in the Energizer Bunny ‘Keep Going’ Hall of Fame!
FROM THE PRESS RELEASE…
Kansas City resident Jeff Benelli was today announced a semi-finalist in the Energizer Bunny ‘Keep Going’ Hall of Fame – which celebrates people who make a positive impact and inspire the world through their perseverance, determination, and boundless energy. Benelli, who is legally blind, having been diagnosed with the degenerative eye disease Choroideremia (CHM), has run a total of six marathons in the past five years while raising more than $106,000 to fund a cure for himself, his nephew, and others.
“This is an incredible accomplishment, and I am truly honored to place among the top 100 applicants in the Energizer Bunny ‘Keep Going’ Hall of Fame,” says Jeff Benelli. “However, I am even more honored to be recognized for raising awareness and funding for a cause that not only has the potential to save what’s left of my eyesight – but the sight of my 11-year-old nephew and so many others out there who are going blind because of this disease.”
Benelli has completed 6 marathons since 2005, finishing in the top 7% of his age class in each, and has raised more than $106,000 for the organization currently funding research for a cure – the Choroideremia Research Foundation (CRF). The CRF, which aims to support scientific research for a treatment or cure for CHM, has recently announced notable progress in the search for a cure – and plans to fund Phase 1 of the FDA-required clinical trials in December of 2012. These trials mark an important first step in the process to research, establish and provide a cure.
Facebook users will choose one of the ten finalists by visiting facebook.com/energizer starting March 17, 2011 and voting for their favorite candidate. Once the finalists have been announced on April 4, 2011, individuals can visit www.energizer.com/halloffame to place their vote for the grand-prize winner. For more on Jeff and his complete story visit jeffbenelli.com.
(On the FB page hit CLICK TO VOTE then type Jeff’s name in the search bar)
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